Press release: New strategy to accelerate diagnosis and improve the treatment of rare diseases
The framework will speed up diagnosis, increase awareness and improve treatment and care. The new strategy has been designed around the views and experiences of those living with rare diseases.Millions of people with rare diseases, like Huntingtons disease or cystic fibrosis, will benefit from a new framework to raise awareness of rare diseases, speed up diagnosis and improve care and treatment.The UK Rare Diseases Framework, signed and agreed by all 4 nations of the UK, builds upon the successes of the previous strategy and was developed in consultation with those living with rare diseases following the National Conversation on Rare Diseases.Rare diseases often start through unusual patterns of…
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9 January 2021
