Press release: New strategy to accelerate diagnosis and improve the treatment of rare diseases

The framework will speed up diagnosis, increase awareness and improve treatment and care. The new strategy has been designed around the views and experiences of those living with rare diseases.Millions of people with rare diseases, like Huntingtons disease or cystic fibrosis, will benefit from a new framework to raise awareness of rare diseases, speed up diagnosis and improve care and treatment.The UK Rare Diseases Framework, signed and agreed by all 4 nations of the UK, builds upon the successes of the previous strategy and was developed in consultation with those living with rare diseases following the National Conversation on Rare Diseases.Rare diseases often start through unusual patterns of…

Comments Off on Press release: New strategy to accelerate diagnosis and improve the treatment of rare diseases

Press release: New strategy to accelerate diagnosis and improve treatment of rare diseases

Rare Disease Framework sets out vision to improve the lives of more than 3.5 million people with rare diseases in the UK The framework will speed up diagnosis, increase awareness and improve treatment and care The new strategy has been designed around the views and experiences of those living with rare diseasesMillions of people with rare diseases, like Huntingtons disease or cystic fibrosis, will benefit from a new framework to raise awareness of rare diseases, speed up diagnosis and improve care and treatment.The UK Rare Diseases Framework, signed and agreed by all four nations of the UK, builds upon the successes of the previous strategy and was developed…

Comments Off on Press release: New strategy to accelerate diagnosis and improve treatment of rare diseases