Guidance: Coronavirus (COVID-19) testing: privacy information

Published 17 April 2020
Last updated 23 February 2021 +show all updates

  1. Updated ‘Testing for coronavirus: privacy information and the quick read version to reflect changes to data capturing to more effectively identify coronavirus test samples that should be sent for genomic sequencing.

  2. Updated ‘Testing for coronavirus: privacy information’ and the ‘quick read’ version to reflect changes in self-testing, international arrivals and additional data processors.

  3. Updated ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’ to reflect changes to police and isolation and self-testing and reporting. Added new laboratories (13 to 15) to ‘Annex 6: list of data processors’ of ‘Testing for coronavirus: privacy information’.

  4. In ‘Testing for coronavirus: privacy information’, added Office of National Statistics (ONS) to the list of data processors.

  5. In ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’, under ‘What personal data we collect’, added: ‘recent travel history (for example, whether you travelled overseas in the last 14 days and the country you spent most time in)’. Added new laboratories (5 to 12) and Royal Mail to ‘Annex 6: list of data processors’ of ‘Testing for coronavirus: privacy information’.

  6. Updated ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’ to reflect that we collect data on your NHS login account identifier if you access our services using your NHS login details.

  7. Updated ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’. In both documents, under ‘What personal data we collect’, added: ‘vaccination status’; under ‘Purposes your data will be used for’, added: ‘sharing your vaccination status with Public Health England (if you live in England) to understand the effectiveness of COVID-19 vaccines, including their effectiveness against different strains of the COVID-19 virus, and, where appropriate, to ask you to do a repeat test and/or an antibody test’.

  8. Updated ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’ to clarify the data registered when self-reporting.

  9. Updated ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’ to reflect the addition of the international arrivals Test to Release scheme.

  10. Updated ‘Testing for coronavirus: privacy information’ and its quick read version to reflect the additions of cohort pooling and lateral flow testing methods.

  11. Updated ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’ to include information on the process of self-reporting.

  12. Updated ‘Testing for coronavirus: privacy information quick read’ and ‘Testing for coronavirus: privacy information’ to clarify how data may be used to participate in health research if you live in England and Wales.






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